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Ehlers-Danlos Support UK (EDS UK) was set up in 1987 to support, advise and inform those living with the Ehlers-Danlos syndromes.  Over 30 years later, we are the largest UK charity that exclusively represents and supports people with all type of EDS. We work to minimise the impact of EDS by making its diagnosis, treatment and management accessible to everyone when they need it.

We work to minimise the impact of EDS by making its diagnosis, treatment and management accessible to everyone when they need it. We provide support through local physical and virtual support groups led by trained volunteers and via our freephone helpline.

The Hypermobility Syndromes Association (HMSA) was created in 1992 by patients with what was then called hypermobility syndrome or joint hypermobility syndrome.Globally well-known and respected medical professionals supported and worked closely with the charity. The charity was run by volunteers, who provided a helpline service, membership scheme, residential weekends, as well as a very successful forum and website. The passion and drive of the volunteers enabled the charity to grow rapidly.